Psychogenic nonepileptic seizures (PNES) are an uncomfortable topic, one that is difficult for both patients and healthcare professionals to discuss and treat. Yet it is estimated that PNES are diagnosed in 20 to 30% of people seen at epilepsy centers for intractable seizures. Moreover, in the general population, the prevalence rate is 2-33 per 100,000, making PNES nearly as prevalent as multiple sclerosis or trigeminal neuralgia. Despite these startling statistics, PNES has largely remained a conversation held behind closed doors and in hushed tones throughout the medical community - until now. This book is a compilation of the experiences of people with psychogenic non-epileptic seizures (PNES). This psychological disorder has received little attention in the medical community and those experiencing PNES have often been misdiagnosed as having epilepsy. Some have been told that they are faking their seizures because their seizures do not register on standard tests for epilepsy. Non-epileptic seizures usually occur as a result of past trauma (PTSD) or stressful events which cannot be fully processed by the mind. It is our hope that the telling of our stories will give a voice to those who suffer with PNES and bring awareness to this disorder, educate medical professionals, families and friends of those with PNES and create a new level of compassion and understanding in order to bring about healing for PNES sufferers and all of those affected by this illness.
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